Видео


Living with Crohn's disease-farts and all!



Part II here http://www.youtube.com/watch?v=PtDgcEK_Td8

Millions of us live with digestive problems such as Crohn's disease and whilst it can be highly embarrassing, the more we start talking about it, the less awkwardness there will eventually be.

Follow me at https://twitter.com/MrJonnyBenjamin

My book 'Pill After Pill-poems from a schizophrenic mind' is out now in paperback http://bit.ly/zFDzYT and ebook http://bit.ly/xMjHie


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Комментарии:

Автор Emma Budd ( назад)
Big thumbs up, very honest video and gives a true picture of just what it's
like living with crohn's. Love the fact you filmed it in the
bathroom........probably where we all spend most of our lives lol

Автор frips1000 ( назад)
thats me 6 or 7 times a day and gas and i use to be a ladys man
and i have these depressions now!!!!!

Автор TheKewii ( назад)
It's really what i feel with crohn's, i know .. But i kinnda use to it xD
the most impressing places when i was a student in collage And at the
cinema with horror movies when its silent and my stomach give that amazing
sound xD LOL it can give more sound effects for the movie i guess..

Well am using humira now feeling great and am taking
predensolone :( i like my cheeks but am worried about the side effects..
Thank god am ok for now ..
Get better always my friends💙

Thank you for the inspiring vid.
Maha

Автор Payless Medical ( назад)
Thank you for sharing. This is a great video.

Автор Steve Cat ( назад)
I've had Crohn's disease since 1985. Fortunately the Dr. I saw, his son,
also an MD had it and he told me the steroids they give you are
carcinogenic, and the surgeries worthless and the diagnosis was haphazard.
Remicade appears to be a moderate carcinogen. The MD crowd destroyed his
son's life. His son had the best results by adjusting his diet and taking
vitamin supplements a path I pursued instead of the medications after
talking to his son at length. I started looking for other solutions, and
came across the work of Dr. Abram Hoffer, perhaps the greatest healer since
Jesus Christ. Hoffer along with Nobel Laureate Linus Pauling founded the
fields of Orthomolecular Medicine, Orthomolecular Psychiatry, and
Orthomolecular Nutrition. Hoffer was a PHD in biochemistry and MD with a
specialty of psychiatry who ended up treating many people with terminal
illnesses whom were depressed over standard medical care. His results are
amazing, and this field of Orthomolecular Medicine at last has some
traction in the USA. Linus Pauling had 3 PHDs and of course took on the
entire medical establishment over their corruption and constant pursuit of
patented pharmacological agents to treat chronic and terminal illnesses.
Start with Hoffer's Epic Book, "Orthomoleculer Medicine for Everyone",
where he discusses the basis of Orthomolecular Nutrition and Medicine. It's
a must read for anyone with Chronic or terminal illnesses. Hoffer along
with Linus pauling developed a diet and supplement plan, for instance
designed to increase your survival time 500 % if you had cancer. You can
get the book on Amazon. Hoffer also discovered how to cure alcoholics and
you can read about this in his book, 'The Vitamin Cure for Alcoholism'.
Crohns gets progressively worse as you get older, until it kills you. I was
finally forced to start taking Aloe Vera Supplements, mainly the juice
which helped greatly. I ate a diet of no meat, dairy, sugar, processed
foods, or grains per Hoffer and took his vitamin program. It worked until I
got to be 60. I then tried Cannibis oil, aka Rick Simpson oil, 90 grams
over 4 months, but was not able to tolerate it as I had severe psychotic
reactions to it. An extraordinary number of people have reported amazing
results with cannibis oil, a synthethic version, which btw is in phase 1
trials for brain cancer in the UK. You can mitigate the psychoactive
effects per Hoffer, with high doses of Niacin, and Glutamine and Vitamin C
and other orthomolecular substances, but despite doing this, I was not able
to function at all on cannibis oil, but many people I know have tried it
with no problems. I then read on pubmed some studies showing high doses of
vitamin D3 (and K2) were very effective at treating Crohns disease. So I
read about it extensively. I have a grad education in biomedical
engineering, so I'm quite comfortable being my own healer. Two must read
books are, The Miraculous Results of Extremely High Doses of Vitamin D3, by
Jeff Bowles, and The Power of Vitamin D by S. Zaidi. All on Amazon. I took
40k IU a day of vitamin D3, along with 2500 mcg a day of Vitamin K complex
that was mainly K2. In three months I saw a miraculous recovery. I've been
on 40k IU a day of Vitamin D3 for 3 years now. Now instead of going to the
restroom, 10 times a day, I only go 2-3 and the intense pain is gone. I
weigh 140 lbs and had my vitamin D level checked per Zaidis'
recommendation. Cannibis oil is very, very powerful and legal in many USA
states. I' imagine Cannibis oil plus vitamin D3 and Hoffers megavitamin and
orthomolecular diet program would be very , very effective. People with a
history of mental problems, and in particular Schizophrenia, should not use
cannibis oil, even with an MDs guidance (if you can find one). At least
with Vitamin D3 and Hoffer's program you can get your life back!! I believe
its being 'hidden' by the MD crowd as its very cheap. We have vitacost and
swansons vitamins in the USA that makes decent quality supplements cheap.
Drinking some organic aloe vera juice after every meal will also heal the
ulcers in the colon, or at least it did for me.I believe we can all get the
word out on diet, Cannibis Oil, Orthomolecular Medicine and the miracle of
vitamin D3/K2 in treating Crohns disease.

Автор Steve Cat ( назад)
I've had Crohn's disease since 1985. Fortunately the Dr. I saw, his son,
also an MD had it and he told me the steroids they give you are
carcinogenic, and the surgeries worthless and the diagnosis was haphazard.
Remicade appears to be a moderate carcinogen. The MD crowd destroyed his
son's life. His son had the best results by adjusting his diet and taking
vitamin supplements a path I pursued instead of the medications after
talking to his son at length.

I started looking for other solutions, and came across the work of Dr.
Abram Hoffer, perhaps the greatest healer since Jesus Christ. Hoffer along
with Nobel Laureate Linus Pauling founded the fields of Orthomolecular
Medicine, Orthomolecular Psychiatry, and Orthomolecular Nutrition. Hoffer
was a PHD in biochemistry and MD with a specialty of psychiatry who ended
up treating many people with terminal illnesses whom were depressed over
standard medical care. His results are amazing, and this field of
Orthomolecular Medicine at last has some traction in the USA. Linus Pauling
had 3 PHDs and of course took on the entire medical establishment over
their corruption and constant pursuit of patented pharmacological agents to
treat chronic and terminal illnesses.

Start with Hoffer's Epic Book, "Orthomoleculer Medicine for Everyone",
where he discusses the basis of Orthomolecular Nutrition and Medicine. It's
a must read for anyone with Chronic or terminal illnesses. Hoffer along
with Linus pauling developed a diet and supplement plan, for instance
designed to increase your survival time 500 % if you had cancer. You can
get the book on Amazon. Hoffer also discovered how to cure alcoholics and
you can read about this in his book, 'The Vitamin Cure for Alcoholism'.

Crohns gets progressively worse as you get older, until it kills you. I was
finally forced to start taking Aloe Vera Supplements, mainly the juice
which helped greatly. I ate a diet of no meat, dairy, sugar, processed
foods, or grains per Hoffer and took his vitamin program. It worked until I
got to be 60.

I then tried Cannibis oil, aka Rick Simpson oil, 90 grams over 4 months,
but was not able to tolerate it as I had severe psychotic reactions to it.
An extraordinary number of people have reported amazing results with
cannibis oil, a synthethic version, which btw is in phase 1 trials for
brain cancer in the UK. You can mitigate the psychoactive effects per
Hoffer, with high doses of Niacin, and Glutamine and Vitamin C and other
orthomolecular substances, but despite doing this, I was not able to
function at all on cannibis oil, but many people I know have tried it with
no problems.

I then read on pubmed some studies showing high doses of vitamin D3 (and
K2) were very at treating Crohns disease. So I read about it extensively. I
have a grad education in biomedical engineering, so I'm quite comfortable
being my own healer.

Two must read books are, The Miraculous Results of Extremely High Doses of
Vitamin D3, by Jeff Bowles, and The Power of Vitamin D by S. Zaidi. All on
Amazon.

I took 40k IU a day of vitamin D3, along with 2500 mcg a day of Vitamin K
complex that was mainly K2. In three months I saw a miraculous recovery.
I've been on 40k IU a day of Vitamin D3 for 3 years now. Now instead of
going to the restroom, 10 times a day, I only go 2-3 and the intense pain
is gone. I weigh 140 lbs and had my vitamin D level checked per Zaidis'
recommendation.

Cannibis oil is very, very power and legal in many USA states. I' imagine
Cannbis oil plus vitamin D3 and Hoffers megavitamin and orthomolecular diet
program would be very , very effective.

At least with Vitamin D3 and Hoffer's program you can get your life back!!
I believe its being 'hidden' by the MD crowd as its very cheap. We have
vitacost and swansons vitamins in the USA that makes decent quality
supplements cheap.

Drinking some organic aloe vera juice after every meal will also heal the
ulcers in the colon, or at least it did for me.

God Bless!!

Автор Stefan Gerson ( назад)
That sounds familiar for me but I got the stoma quite early so even if
there is noise it is not any smell. You should look for your Diet.
Tiredness is normal especially when you should go out to have some fun and
can find some relief. Relationships are from my standpoint very difficult.
I lived in germany and sometimes people are so root to each other I am very
upset all the time even with women. Sometimes you have to get back to
yourself and stay positive which is the mood for most of self healing
processes. 

Автор dudley hawksworth ( назад)
Good on you dude I am 14 now I was diagnosed when I was 10 it sucks but
anyone out there with it stay strong and keep going

Автор Benjamin Whittaker ( назад)
Thanks for this video, I am having a colonoscopy next week as the doc
suspects I have Crohns and the latter part of the video really put my mind
at ease. Did exactly the same as you an read about all the horror stories.

Автор No Name (L.J.) ( назад)
Your adorable. Great video. I would enjoy ur gassy company. Lol :-)

Автор Jas C ( назад)
Hey, I don't have Crohn's disease but I'm 22 and have a chronic lung
illness. Just wanted you to know I really relate, especially with the
relationship stuff. It's a struggle mentally too, but the fact that you
can speak about it like this is really empowering. Don't let it define
you, because just from this video I can tell you are an incredible person
and you are really cute too!

Автор changingears ( назад)
much sympathies for you and your ailment. it takes a lot of courage to talk
about this let alone show your face to strangers. i feel almost embarrassed
just leaving a comment about this as i feel that someone could identify me.
anyway i have suffered similar conditions as you for most of my life and
for the past 10 years my symptoms have worsened but i am able to live a
somewhat "normal" life. i completely understand your concerns about
relationships but maybe you can find a partner who also suffers from this
and thus have a common understanding between you. i just wanted to thank
you for speaking about this as it makes me feel less alone as a sufferer.
best of luck and the courage to face this problem head on.

Автор Jakub Mesaros ( назад)
Join the club, Jonny...
I was diagnosed a ONE DAY after my Birthday 's back in 2013. Since then it
has been quite challenging uphill struggle. Had an allergic reaction to
Azathioprine and almost didn't make it... Mercaptopurine was a living hell,
that's how I can describe it... Then kidney failure, chollesystitis,
problems with liver, back and knees, etcetra.
Then we tried Adalimumab which truly is an miracle drug, you know. Felt
better after 4 days since first injections. Have you tried any biologics?
I wish and pray that someone somewhere finds a cure for this...

Автор Cozzie Corinne ( назад)
I've just found you through this video.. then like thalia I also found the
find mike video abd realised it was you! I don't have crohns but I had
Ulcerative Colitis and now have a jpouch. I wanted to reach out and thank
you for sharing awareness of inflammatory bowel disease. I am one of the
admin for the 4 girls who founded a campaign called #getyourbellyout who
are also spreading awareness and raised £26+ for Crohn's and Colitis uk. I
hope your well. Thanks again. Corinne x

Автор Robbie Lockie ( назад)
Do you know that we have more bacteria in our bodies then there are human
cells, I really believe that there is a connection between mental health,
and our digestive tract. If the digestive tract is a vital part of our
wellbeing, if its not working properly, it can cause a break down to the
entire system.

I am sorry to hear you have suffered so much with this. I know its a
strange question but have you ever heard of nam myoho renge kyo? 

Автор Donald Johnson ( назад)
JONNY -- Me again, Donald in Cardiff. No shame about your gas -- but I can
only guess how awkward you must feel sometimes. Actually, no I can't guess.
Don't have any idea. I have OFTEN wondered why we humans feel such shame
about our shit, and so much disgust about what is a very natural and
essential process for us to survive on Earth -- digestion, that is. This
video was posted four years ago -- so did you ever find people to talk to
about this comfortably -- some acceptance. You're breaking my heart about
your fear of having a relationship because you might feel embarrassed and
dirty while making love. Jesus, the details you share are incredible. I
never knew anything about Crohn's disease previously. But again, you just
communicate it so gently but clearly. PLEASE respond. I think we could help
each other. I'm moving on to another video of yours called "Blushing &
blinking". -- Donald in Cardiff

Автор steamriceroll ( назад)
Don't feel bad, get help from your family doctors. I wish you good luck,
just take care of your body, that is all. Be brave, young man.

Автор Yosemite Sam ( назад)
Jonny, why don't you blow a big one out your keester and give us idea what
you're talking about?

Автор Abby Katerina ( назад)
I have Crohns too, do u have a special diet? do u avoid any foods? 

Автор ginger irons ( назад)
you seem so shy making this video is adorable :X but really you are so
brave! I have ulcerative cultic, which is basically the same thing, but do
have a few differences. I know exactly the way you are feeling. I was
fourteen when I was diagnosed, and I went about three months before without
it, and honestly I thought I was dying before. I was so terrified. when I
found out what it actually was I was relieved at first, then I was like,
crap now I have a life long disease? what will happen? can I have kids? how
relationships work? what if I'm in the middle of class, and suddenly my
stomach sounds like a monster and I have to go to the bathroom? for me,
more of the problem with this disease is that it is embarrassing. I can
deal with the pain, I have learned over the years how to coup with it. but
there is nothing you can do about the sounds and smells, and it is just
terrible. I try not to really tell people to many details about it, I just
tell them I have a stomach problem and that is all, if they ask for more
details I will tell them. luckily no one as really made a big deal about it
and I was able to find a boyfriend who is understanding about it. I just
hope other people are that lucky. again you are so brave to make this video
it was very inspiring and I could relate so much to it! 

Автор Asharah Flores ( назад)
I was probably made to be with a man with Crohn's disease... I actually get
turned on when a guy farts/burps.

Автор Justin Jensen in Hidden Files ( назад)
Can you hold your Farting with this condition? 

Автор Tim Wright ( назад)
Did you find that you would get eggy horrible burps then vomiting or
diarrhoea on a regular basis ?

Автор une rebelle ( назад)
i'm from algeria and me and my sister we have chron disease and we soufre

Автор Mi Picasso ( назад)
You're definitely a strong-willed person and whoever is fortunate enough to
be your "second half", should play the lotto the day he meets you. What a
lucky person he would be. You sound like one of my best friends where his
motto is "to know me is to love me." The best of luck to you, man!
Awesome person, for sure!

Автор Bluttgesicht ( назад)
Question for you Jonny. I do not have Crohn's disease but was diagnosed
with IBS at the age of 15. I am a 19 year old male and amongst other
symptoms I suffer from extreme bloating. I am very slim (5' 9'' and 10st 2)
but often after eating a meal I could pass for being pregnant. My stomach
blows up like a balloon and can become enormous. Not ever particularly
painful, but it is uncomfortable and very embarassing in social situations.
Have you ever experienced anything similiar and if so, how have you managed
to deal with it, and /or conceal it?

Автор Callum Fletcher ( назад)
You're such a wonderful human.
I don't have Crohns, but I'm very interested to learn as I had never heard
this before.
Such a brave person to have to go through this. I can't relate, but I wish
you all the best. I hope you think positively and try to enjoy your live.
Best wishes!


Автор NUNYA BIZZNISS (823 года назад)
I wish I could get Crohns......you people don't know what you have! You
are BLESSED!! I have to eat HUGE amounts of fiber to get massive farts
that you get naturally......J~E~A~L~O~U~S!!!!!!!!!!!
DON'T HIDE!!!!......JUST LET THEM FLY!!!!!

Автор Carla 123 ( назад)
Hi Jonny, really appreciate you making this video and being so honest. I
was diagnosed with Crohn's just a few months ago at the age of 23 and I'm
still coming to terms with it. All the symptoms you described and the
feelings you were talking about for example having intimate relationships
is exactly how I feel too. The muscle spasms are something that are really
quite scary and unpleasant and I only realised a few weeks ago that they
were due to Crohn's. How are you doing now seeming as this video was made a
few years ago? I've started two types of medication ; Pantese and
Azathioprine but I'm not sure that they are helping too much yet although
I'm definitely better than the first flare up I had. Just nice to know how
other people with Crohn's get on some years after they are diagnosed and to
know the little things that help them to deal with it :)

Автор Sean Roderick"s Music Channel ( назад)
Your a star, I'm in hospital with the disease now, waiting for my
operation, all the best keep posting ...

Автор Christye Lynn ( назад)
I have Chron's Disease and I totally understand where you are coming from.
When you are flaring, you're miserable. You can't eat what everyone else
eats. You're gassy. You have this awful, cramping feeling. You can poop
yourself. Your joints hurt and you're tired. Jobs don't understand. Family
and friends don't understand. Sometimes, it's frustrating. I try to have
fun with it though. My first date with my first boyfriend, I kept farting
until I pooped myself. Another time, I was in my friend's vehicle and I
pooped myself and her daughter told everyone at church I pooped in her
mommy's car. I just laugh it off and hope that the people around me will be
understanding. 

Автор Marcelino1098 ( назад)
I know exactly how you feel. I reconize a lot of the things you are going
throught. I never really had farting problems but I had to get a surgery
because the pain was insane and the medication didn't help me anymore. I
was happy that they would remove the sick part so I had a lot of hope for
the time coming but too bad, the disease returned very quickly and it
seems that I have a pretty agressive form of Crohn. So I had to get
medication again but it didn't and doesn't really help up to this day. One
of the good results was that i was a lot more hungry, so in those months i
ate a lot more than i would normally do but i didn't gain any weight. But
there my other problem started, the farts.... 4-5 hours after I ate
something I feel the gas in my stomach. And around the end of the afternoon
5-6 pm the farting starts( sometimes earlier). I keep on going the whole
evening till i go to the toilet again. So my social life( going out with
friends,seeing family etc) is also very thin. Im affraid of going
somewhere. The other main problem is that I have trouble on the toilet. It
always took pretty long to yeah.. poop... aroud 15-20 min but since the
surgery it has become extremely long. Mostly 30-45 minutes and sometimes
even up to an hour( 2-3 times a day) . My poop isn't hard aswell, it just
comes bits by bits. I never really know when i'm ''done''.It's very very
tireing. So my biggest problem at this moment are the farts and the visit
on the toilet. Medication isn't really helping me at this moment and the
doctors don't want to research me more or give a new medicin
yet(vedalizumab) because the situation is not ''bad '' enough yet.
The thing that im doing at this moment is eating with a diet. A different
doctor researched me and he said that I have intolerence for cowmilk
protein, soya and i should reduce refined sugars and take a lot of
different grains, and the doctor gave me some probiotics and pure vitamine
d. I'm even trying to eat grainfree for some time to see the results and i
have the idea the farting starts to reduce. But the diet needs 4-6 weeks to
start working. I wonder and hope that it will because I know a man that has
colitus and he's been to this doctor and he is already for 5 years symptom
free (without medication). The diet is changing and hard in the start but
with a good cooking book it's possible! And also a tip, if your affraid for
a colonoscopy or the other 1 via the mouth, ask for some Anesthesia. I fell
asleep and felt nothing! Don't know how that works where you live but here
in Holland you can ask your doctor. Good luck and perhaps this diet is also
something worth trying for you. Or maybe you got a different food
intolerance. Try to ask for tests. I hope it works for me so i can give
these tips to other crohn and colitus patiënts. Goodluck and stay strong
even though it's sometimes very hard!

Автор SUPERBADJEFFREY ( назад)
People with Crohn's disease fart out their dick.

Автор Doo Lally ( назад)
Hi everyone with Crohn's - me too!
I had symptoms even after a major bowel resection and finally was told I
had IBS as well.
Please research a FODMAPS diet. It has helped me a lot!

Автор Patti Jo Neronha ( назад)
What courage... I am also a Crohnie... Thank you for sharing

Автор Jesse Balkcom ( назад)
Hey what's going on bro? I really respect you for making this video. I was
diagnosed with Crohn's along with a chronic liver disease and a blood
disorder when I was 19. My life changed drastically. I was an athlete in
high school and was always in great shape and then that day came. I ended
up going from being a 215lbs to 135lbs in the period of a month from going
to the bathroom so much. I'm 26 now and still suffering. I have my good
days, but when I have those down days, they are really down. I feel alone.
I usually stay away from the world. I outcast myself. I often wonder about
finding a woman and having my own family someday. I can barely work since
my down's outweigh the up's. I try to stay positive, but that fades. So
once again, you got heart, you're brave and I wish you the best bro.

Автор Alyssa Callaghan ( назад)
you're very attractive

Автор Amanda Jones ( назад)
Jonny,

With respect to relationships let me give you some words of wisdom. There
are plenty of people who will like/love you regardless of whether or not
you have Crohn's. Yes, there are plenty of people as well who will not take
the time to understand what you're dealing with and they're just not the
right people for you. Can't tell if you're in a relationship now (based on
video) but here's a little bit of advice. If you are, the sooner you
discuss it with that person the better. If that person is potentially the
right person for you it will only increase your bond. It will also relieve
a lot of stress - especially on dates. If the person is unwilling to be
with you or even take the time to learn what you're dealing with then
you've saved yourself a lot of wasted time.

Now, knowing when to discuss your condition when entering a new
relationship can be trickier. In the end it really comes down to two
things. 1. When you're comfortable and 2. Whether or not the person you're
with is the right one for you. They're either going to like/love and accept
you regardless of whether you tell them on the first date or later on.

I'm sure many will argue that bringing it up on a first date or second
might be too soon and there are some valid points to that. Some perceive
that as opening up too quickly and potentially scaring people off not
necessarily because they're grossed out or don't want to be with you but
because they might perceive that as opening up too quickly and trying to
rush into a serious relationship too soon.

In the end, there's no right answer, only what you feel is right.
Regardless of when you tell them or how you tell them if that person you're
with is the right person for you (either at that stage in your life as or
as a spouse) they will see past it.

Best of luck

Автор Gillian Dilkes ( назад)
you seem to be taking the piss. Is that you on the right column oh yes it
is. with all those other conditions. surely not. shame on you and shame on
me if i am wrong

Автор kwixotic ( назад)
You might know of a thing called flat d deodorizer which doesn't work as
well as the maker makes it out to be. However, it does prevent a residual
smell in one's underpants. Apparently, Crohn's is more common in the UK
than I thought and of course common in the North American continent.

Автор Thaila Skye ( назад)
I originally found your channel via this video. And then I watched your
other videos. And then I saw the FindMike campaign film and just sat
sobbing for about ten minutes. (In a good way... if that makes sense?)
I have Crohn's disease, and my bowel perforated, so I had to have ostomy
surgery (and make videos about it). So many conditions (whether it's a
physical illness or mental illness) are hardly ever talked about openly
because people are embarrassed or scared, or just don't understand.
I'm so glad you are doing what you're doing, and I'm proud to be doing what
I'm doing too. Because if it helps someone recognise symptoms, whether it's
in themselves or in others, it can save a life.
Keep fighting, you're doing great. <3 xTxx 

Автор patricia terrell ( назад)
Everything that you said hits home. I feel exactly the same way and mask it
with humor. 

Автор sage willow ( назад)
you are beautiful ...farts and all!

Автор livin abox ( назад)
2 years ago i was throwing up poo, id had guts ache for 2 weeks and it was
horrible. I googled it and then realized some thing was badly wrong. I went
to the hospital and told them the story and within 24 hours i had an
operation that saved my life. Yep running in the loo 6 times a day aint fun
so i know where you are coming from. 

Автор Lucy Jordan ( назад)
I know how you feel - especially getting intimate it scared me so much - I
wasn't until about one and a half years after diagnosis. You just have to
tell them if it's going to be an issue, which means making sure you're not
TMIing (too much information) and get to know them first. Absolutely feel
your pain though, every time I leave the house it really panics me, and
going anywhere further than my town absolutely terrifies me. Even if
something doesn't go wrong you're always scared that it might. I remember
breaking down once in a pharmacy because they hadn't got the antibiotics I
needed and I was so exhausted from trying about 7 others, the overwhelming
feeling is the worst. Though it makes it easier knowing other people go
through similar things. 

Автор xValetinax ( назад)
2 questions: How would you recommend supporting someone with Crohns? Do you
think someone's mental health can affect the control they have over
Chrones?

Автор valeriodujmovic ( назад)
GINGER ROOT can cure all of the digestive problems ! Start the morning
with some warm water, half lemon squeezed in it, teaspoon of real honey,
cinnamon and some GINGER ROOT ! GINGER ROOT RULES !!! It will take a few
weeks for the symptoms to go away. Plus everything that ''torteinlunde'' is
saying down there. 

Автор luke tomlin ( назад)
watched your video about your crohn's and your worries about finding a
partner! My ex, and an ex who remains a great friend still, had crohn's!
All the same problems as you described! I just wanted to say please don't
worry, my ex and I just laughed about it and we worked fine together ;) you
are good looking and have great personality and presence - that is what
matters above anything else! Just be honest from the start, there are
plenty of people out there for you who understand and can except other
peoples issues. Keep up the great work you do :) 

Автор Brandon Gamer ( назад)
I went to docs today because of symptoms and they said. I've got 2 go to
hospital 2morrow but if I got it I could be like my footballing hero darren
fletcher

Автор jessica feldman ( назад)
I have post infecious IBS since 2012 its ruined and taken over my life and
I can 100% relate to this though its so different I am constantly running
to the loo and your so brave Jonny I am so proud to even know you take care
hun xxxxxxxx always here if you wanna talk if you remember me I was 2 years
below you xxxx

Автор sim596crazy ( назад)
Very brave, i suffer with crohns disease, it took 1 year to diagnose
because i got told to go for a colonoscopy and that freaked me out and i
didnt go ahead with it until 1 year later i became so ill that i nearly
died because i didnt get treated for it i developed blood clots large ones
and they traveled to my lungs, then i had relevant tests for them to
diagnose me. Also whilst in hospital i had a ct scan done witch showed an
abcess which healed when i started treatment, im on steroids welldon

Автор Jessica Walker ( назад)
I've had crohns disease since I was 8 years old and I am now 16. I can
relate so much to everything you have talked about. I am homeschooled
because I was missing so much school.because I was always sick and in and
out of hospitals, and it is so hard to live with but it does get easier,
but tomorrow im going to get remicade again and was feeling down, but
knowing someone knows what im going through helps me feel a lot better so
thank you for posting this video

Автор Jonny Benjamin 1 ( назад)
Thanks Salome. You will get there...acceptance can be so tough, it takes
time.Try and be kind to yourself, easier said than done i know! Look into
mindfulness..two of the key elements of this is acceptance and
self-compassion. You could really benefit from learning more about it. A
good starting place is Mindfulness For Beginners by Jon Kabbat Zinn :)

Автор Jonny Benjamin 1 ( назад)
Thanks for your message Vikki. My diagnosis changed to IBS. It's great
about your sister, thanks for sharing such a positive message :) hope
you're doing ok too. I'm learning ways to manage my IBS. It's tough and i
recently had a bad flare up but i'll get there. Great to hear from you!

Автор Salome Halle ( назад)
Thanks so much for making this I have colitis and you have inspired me to
talk more about my fears....thanks for sharing makes such a difference to
hear others feel the same way...I feel like less of a freak....I often feel
like it is my fault I am sick...I must have done something wrong if I could
just figure out what I could make it right maybe....I must be in the
bargaining stage of grief....acceptance must be around the corner
now....hurry up acceptance I am ready for you...:)

Автор Vikki Baker ( назад)
Hey Jonny, I suffer from IBS which is no way near as extreme but my sister
has Crohns and things are improving all the time. She has been living with
it for about 20 years and in that time, it's remarkable how treatments have
come on. In recent years, her symptoms have settled down hugely. She hasn't
had a flare up for a couple of years. So stay positive, which is hard I
know. And as for relationships. She has a lovely chap and two beautiful
kids. Don't let it knock your confidence!

Автор Katie JoanneH ( назад)
you're cute, hope things get better!

Автор Jonny Benjamin 1 ( назад)
Sorry to hear that. I hope you find the drugs helpful. You're not alone..it
can get better. I'm still struggling today but a lot better than i was when
i made this video :)

Автор Jonny Benjamin 1 ( назад)
Thanks Amelia..i know it's tough but keep fighting. Hopefully you will be
able to get it under control before too long :)

Автор Jonny Benjamin 1 ( назад)
Thanks Joanne, same goes for you...keep strong my friend, and keep
believing :)

Автор Jonny Benjamin 1 ( назад)
Hi, thanks for your message. You can send me a personal message to my
YouTube inbox. Subscribe to me on my channel homepage and send me a message
from there :)

Автор Holiday72ify ( назад)
Thank you for your video and sharing. I was just diagnosed. I don't want to
go anywhere anymore, even on holiday. I pray this drugs help!!!

Автор Amelia Mullin ( назад)
I was diagnosed with Crohns aged 13 and I find it so hard to accept, the
fact you have the guts to make a video like this explaining exactly what it
does and how it makes you feel! You are an inspiration :D

Автор Asia Julia ( назад)
I hope U will find somebody who will love U and your disease. You are
superhundsome and seem like lovely person! I know your pain and problems. I
have the same. Be brave!

Автор Nefe D ( назад)
Dear John,im happy for your videos,Its so difficult to live with bowel
disorders and so dificult to socialize! I m not diagnosed with Chrons,but
with IBS..I have bowel disorders too:) But my mother has UC(thats why they
told me to plan a colonoscopy)!! and I m so much into a research and also
planned my colonoscopy for next month! I would like to send you a personal
message!! How could I?? thanks a lot :)

Автор Louise Beall ( назад)
You're such an inspiration, to me and many others :) x

Автор lucyytee29 ( назад)
I saw you on BBC 3 yesterday!!! The whole time I was like I recognise him
then realised it was from this video!!! Well done :)

Автор Jonny Benjamin 1 ( назад)
I was put on Asacol for a bit and that helped but do try and see a
nutritionist-that's helped me more than any doctor I've seen. They can
advise you on diet as well as what supplements to take. I really hope you
feel better soon. I know what it's like. Hang in there xx

Автор Jonny Benjamin 1 ( назад)
Sounds like you're going through quite an ordeal at the moment but I'm
really glad you're staying positive, I know it can be tough at times. You
should look into alternative meds/supplements like probiotics and
prebiotics...I just made a video about what I take and what's helped me.
My stools alternated too-sometimes constipation, sometimes diarrhoea.
Couldn't eat much either when I was really ill. Sorry you're experiencing
so much pain and discomfort. I

Автор Ruth Luke ( назад)
I love you!! You're just an inspiration and there needs to be more people
like you. Thank you for your videos, and your life on this earth is a
blessing to us all.

Автор Chrysalis M ( назад)
Thanks Johnny, they found inflammation in my left hand colon , so I'm
waiting for the results. Hopefully I can get some treatment for it but when
I asked my gp about it he said it sounds like crohns or ulcerative colitis
with the blood and mucus, chronic pain for months etc, I just hope I can
get a diagnosis and treatment quick, sick of being housebound, my mind is
fine so its just stuck in a painful dysfunctional body, hard to resist the
depression at times but I keep my mind active to cope.xx

Автор Chrysalis M ( назад)
Ah well not many people can claim to have endured anal probing all the way
round their colon without being taken into a spaceship.

Автор Chrysalis M ( назад)
They have found inflammation in my left hand side bowel, being having
bloody mucus coming out of me for months, had some biopsies taken and still
waiting for results. I have been in agony for over a year and been ignored
and given laxatives and antacids?? Took months before I got the colonoscopy
and that air up the arse was bloody awful even when stoned on two jags of
pethidine, and that laxative before it with the explosive diarehea lol did
you go through that? I'm stuck on the couch as well.

Автор Chrysalis M ( назад)
Can they remove part of the left hand colon without having a bag inserted,
anyone know? Personally Id rather have this diseased part removed, I'm not
thin though, is this unusual? I tend to have constipation and (i think)
blockages as opposed to constant diarehea, it alternates, though I am
taking painkillers with codeine for the pain which can constipate. Cant eat
very much at once though, little and often. Anyone else have similar
symptoms?

Автор Chrysalis M ( назад)
Thanks for the reply, ive just had the colonoscopy and I have inflammation
of the left hand colon, still waiting for results but with the blood and
mucus horror every time I go to the toilet the doc basically said it sounds
like crohens or colitis, during the colonoscopy they aid they didnt see
signs of colitis but I think crohens is worse? Just be glad to be diagnosed
and receive some kind of treatment as I am just going from one flare up to
the next, once every three weeks and pain always.

Автор Jonny Benjamin 1 ( назад)
I'm sorry to read that. I hope you've got lots of support around you. I
know it's tough but don't let it get in the way of your future..you're so
young and i'm sure you've got such a bright future ahead of you...in the
wise words of someone below..you own it, it doesn't own you!

Автор Jonny Benjamin 1 ( назад)
Thanks Michael. I know it's tough and very isolating. It can get better
though..i'm lots better since i made this video. I'm about to post a new
one with some of the things that have worked for me. I'm by no means 100%
but i'm getting there i hope. Watch it and maybe something i mention might
work for you too? Keep up the fight!

Автор Jonny Benjamin 1 ( назад)
Thank-you for your kind words. Sorry that you're going through this well.
Nice to know we're not alone. You keep strong too, don't give up!

Автор Jonny Benjamin 1 ( назад)
I'm really really sorry to read this...i can't imagine what it's been like
for you. Is there no way you could maybe sue? You may have a case? There
must be some way out of this? Are you in the UK? Maybe talk to the National
Crohns and Colitis Foundation? They may be able to help somehow? I hate the
fact you're suffering so much. Don't give up though. I understand how angry
you are though, i would be too. Thinking of you

Автор Jonny Benjamin 1 ( назад)
Thanks for your message, it's great to hear you've got your confidence back
:) i love your last words, very powerful! Thank-you! x

Автор Jonny Benjamin 1 ( назад)
I'm not sure?

Автор Jonny Benjamin 1 ( назад)
Ah i'm so sorry to know you're experiencing all of this right now. It
sounds quite similar to what i went through a couple of years back. Maybe
having a colonoscopy will reveal more? It's not too bad the colonoscopy..a
bit uncomfortable but i've had worse things done to me! Keep fighting
this..it will pass. Hopefully they'll get you on the right meds or figure
out a diet that works for you. It's taken me a while but i'm better than i
was when i made this video. You'll get there too Margaret xx

Автор JSDHfilms ( назад)
I had colitis then they took out my colon now I have IBD. I got colitis
when I was 3 (I was a rare case) and now I'm 11 :(

Автор Tohellwithgoogleplus ( назад)
Aww sugar): I just wanna give you a hug!

Автор Michael Munger ( назад)
Hey buddy.. Seeing this video you posted really meant a lot because I am
going through basically the same and it's hard not feeling completely
alone. Always worrying about what you're putting into your body and never
knowing if it will get any better can be very discouraging but I think the
first and most important step is being honest and open about what's going
on and that's what you did. You seem like an amazing guy and I hope it all
works out and I think you'll come out of this.

Автор Riss Cake ( назад)
I understand your pain and embarrassment so much - although I hate to see
other people going through the same thing as me, it is nice to know that I
am not alone and that I am not imagining some of the things that happen/how
I feel. You seem like a wonderful man, and any girl would be lucky to call
you theirs - so please don't let this disease affect your intimate
relatioships. Keep going! Take care

Автор andaymartyn ( назад)
please see a naturopath for your stomach problems

Автор andaymartyn ( назад)
i have 2 bruises the size of my fists coming outward ffrom the midline of
my arse cheeks down the bottom...... i'm a chiropractor but i have to work
selling something green to pay for my medications.... yeah.... i wanna
shoot my doctor... i think about it everyday.... i wanna stab him in the
arse 7 times, i wanna kill him.. i wanna torture him.... i was like all of
you once and thought life was tough... now i envy people with cancer.
atleast they're allowed to die..

Автор andaymartyn ( назад)
and said "look how serious your condition is you cannot even sit down" I
had said.. "that's because you drilled holes in my arse and put elastic
bands in there". anyway, 9 months later and i'm still not able to sit
down.. my mum was so worried (would cry everyday) that late November she
got in contact with a professor broody from the center of digestive
diseases near Sydney and..... well, now i'm spending my days on the couch
watching movies all day spending $900 a month on medications.

Автор andaymartyn ( назад)
"AND... the perianal absess has gone, I do not believe it is necessary for
this procedure anymore", he laughed and said "we'll have a look"... I was
told that after the procedure the stitches would be so comfortable that I
wouldn't even notice that they were there. i'd woken up from the procedure
with blood everywhere and noticed the elastic bands drilled into my arse
cheeks and sticking out my arse hole tied up in knots within a second.. a
week later my doctor laughed at me and said

Автор andaymartyn ( назад)
had completely gone, i'd gone in for the procedure for the seton stitches
that day because I didn't want to upset my mum and I was pretty keen on the
colonoscopy cause ya get all drugged up n shit from it. anyway, laying in
my bed I had said to my doctor "a perianal absess is a side affect from the
prednisone, am I correct?" he acknowledged me with a nod and said that is
correct.. I then said "well, I've been seeing a naturopath for a week now
and he's taken me off all medications and (continued

Автор andaymartyn ( назад)
before the procedure of getting the seton stitches in my arse I had the
best week of health my body has ever experienced within the 7 years or so
that I've now had crohns.. during that week I had also done research on the
side affects of the standard 3 medications that you're given for crohns
disease, *Imuran, prednisone and mesasel* and found that the infection was
a side affect from the prednisone.. by the day of my procedure after being
taken off the prednisone my infection had (continued)

Автор andaymartyn ( назад)
I had an infection in my arse and had gone to the hospital and got fast
tracked to see a gastroenterologist surgeon, he had organized a procedure
to put seton stitches in my arse a month after we had met.. a week before
the procedure I had seen a naturopath who had taken me off prednisone and
mesasel and had given me herbal medicines which at the time I thought were
expensive.. spending maybe 40-50 a week on the herbal meds.. for that week
after seeing the naturopath and before (continued)

Автор ladylipstick100 ( назад)
I have had crohns for 11 years now and have taken steroids in the past, but
am now on azathiaprine which has totally changed my life. Never thought I
would get my confidence back but I have. I have been in and out of hospital
having tests and its no big deal as at least I am being kept an eye on.
Good luck to you in your life and remember "you've got it, it hasnt got
you" x

Автор oneTwoThree ( назад)
are you allowed to take activated charcoal?

Автор Chrysalis M ( назад)
Cont Sick all the time is not much fun for a lover, when I feel this
bloated, sore and sick it is nearly impossible to bear being close to
someone comfortably, I tend to just go inside myself to deal with it. The
bowel contractions are the most horrifically painful experience, I'm scared
to even talk about it, anyway you are not alone and I found your sharing
your experience very comforting. You seem a lovely attractive guy who will
for sure meet someone soon. Hugs and best wishes x margaret xx

Автор Chrysalis M ( назад)
Oh huni what a terrible thing my heart breaks for you. I think you are
extremely brave doing this on camera. I remain undiagnosed at the moment
and am in chronic pain on my left upper abdomen, I have passed mucus and
blood but as yet Ive not had a colonoscopy (camera up the butt), I have had
the camera look in my stomach and have had scans of my organs which came up
with nothing. I'm just fatigued constantly with recurring infections I
think. This is hard on intimate relationships as being cont

Автор Jonny Benjamin 1 ( назад)
I hope they can too. Don't give up..keep fighting it. Look at changing your
diet if you can and see a nutritionist..they really helped me. Good luck

Автор Jonny Benjamin 1 ( назад)
I don't take meds anymore...i'm on probiotics and prebiotics after seeing a
nutritionist. Try and see one if you can. I used to get more tired than i
can put into words so i know how you feel. The pro and prebiotics have
helped with the tiredness.

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