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Living with Crohn's disease-farts and all!



Part II here http://www.youtube.com/watch?v=PtDgcEK_Td8

Millions of us live with digestive problems such as Crohn's disease and whilst it can be highly embarrassing, the more we start talking about it, the less awkwardness there will eventually be.

Follow me at https://twitter.com/MrJonnyBenjamin

My book 'Pill After Pill-poems from a schizophrenic mind' is out now in paperback http://bit.ly/zFDzYT and ebook http://bit.ly/xMjHie

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Комментарии:

Автор Bluttgesicht (26 дней)
Question for you Jonny. I do not have Crohn's disease but was diagnosed
with IBS at the age of 15. I am a 19 year old male and amongst other
symptoms I suffer from extreme bloating. I am very slim (5' 9'' and 10st 2)
but often after eating a meal I could pass for being pregnant. My stomach
blows up like a balloon and can become enormous. Not ever particularly
painful, but it is uncomfortable and very embarassing in social situations.
Have you ever experienced anything similiar and if so, how have you managed
to deal with it, and /or conceal it?

Автор Callum Fletcher (27 дней)
You're such a wonderful human.
I don't have Crohns, but I'm very interested to learn as I had never heard
this before.
Such a brave person to have to go through this. I can't relate, but I wish
you all the best. I hope you think positively and try to enjoy your live.
Best wishes!


Автор Christye Lynn (2 месяца)
I have Chron's Disease and I totally understand where you are coming from.
When you are flaring, you're miserable. You can't eat what everyone else
eats. You're gassy. You have this awful, cramping feeling. You can poop
yourself. Your joints hurt and you're tired. Jobs don't understand. Family
and friends don't understand. Sometimes, it's frustrating. I try to have
fun with it though. My first date with my first boyfriend, I kept farting
until I pooped myself. Another time, I was in my friend's vehicle and I
pooped myself and her daughter told everyone at church I pooped in her
mommy's car. I just laugh it off and hope that the people around me will be
understanding. 

Автор Mi Picasso (25 дней)
You're definitely a strong-willed person and whoever is fortunate enough to
be your "second half", should play the lotto the day he meets you. What a
lucky person he would be. You sound like one of my best friends where his
motto is "to know me is to love me." The best of luck to you, man!
Awesome person, for sure!

Автор Carla B (1 месяц)
Hi Jonny, really appreciate you making this video and being so honest. I
was diagnosed with Crohn's just a few months ago at the age of 23 and I'm
still coming to terms with it. All the symptoms you described and the
feelings you were talking about for example having intimate relationships
is exactly how I feel too. The muscle spasms are something that are really
quite scary and unpleasant and I only realised a few weeks ago that they
were due to Crohn's. How are you doing now seeming as this video was made a
few years ago? I've started two types of medication ; Pantese and
Azathioprine but I'm not sure that they are helping too much yet although
I'm definitely better than the first flare up I had. Just nice to know how
other people with Crohn's get on some years after they are diagnosed and to
know the little things that help them to deal with it :)

Автор Marcelino1098 (3 месяца)
I know exactly how you feel. I reconize a lot of the things you are going
throught. I never really had farting problems but I had to get a surgery
because the pain was insane and the medication didn't help me anymore. I
was happy that they would remove the sick part so I had a lot of hope for
the time coming but too bad, the disease returned very quickly and it
seems that I have a pretty agressive form of Crohn. So I had to get
medication again but it didn't and doesn't really help up to this day. One
of the good results was that i was a lot more hungry, so in those months i
ate a lot more than i would normally do but i didn't gain any weight. But
there my other problem started, the farts.... 4-5 hours after I ate
something I feel the gas in my stomach. And around the end of the afternoon
5-6 pm the farting starts( sometimes earlier). I keep on going the whole
evening till i go to the toilet again. So my social life( going out with
friends,seeing family etc) is also very thin. Im affraid of going
somewhere. The other main problem is that I have trouble on the toilet. It
always took pretty long to yeah.. poop... aroud 15-20 min but since the
surgery it has become extremely long. Mostly 30-45 minutes and sometimes
even up to an hour( 2-3 times a day) . My poop isn't hard aswell, it just
comes bits by bits. I never really know when i'm ''done''.It's very very
tireing. So my biggest problem at this moment are the farts and the visit
on the toilet. Medication isn't really helping me at this moment and the
doctors don't want to research me more or give a new medicin
yet(vedalizumab) because the situation is not ''bad '' enough yet.
The thing that im doing at this moment is eating with a diet. A different
doctor researched me and he said that I have intolerence for cowmilk
protein, soya and i should reduce refined sugars and take a lot of
different grains, and the doctor gave me some probiotics and pure vitamine
d. I'm even trying to eat grainfree for some time to see the results and i
have the idea the farting starts to reduce. But the diet needs 4-6 weeks to
start working. I wonder and hope that it will because I know a man that has
colitus and he's been to this doctor and he is already for 5 years symptom
free (without medication). The diet is changing and hard in the start but
with a good cooking book it's possible! And also a tip, if your affraid for
a colonoscopy or the other 1 via the mouth, ask for some Anesthesia. I fell
asleep and felt nothing! Don't know how that works where you live but here
in Holland you can ask your doctor. Good luck and perhaps this diet is also
something worth trying for you. Or maybe you got a different food
intolerance. Try to ask for tests. I hope it works for me so i can give
these tips to other crohn and colitus patiënts. Goodluck and stay strong
even though it's sometimes very hard!

Автор Asharah Flores (6 дней)
I was probably made to be with a man with Crohn's disease... I actually get
turned on when a guy farts/burps.

Автор Justin Jensen (6 дней)
Can you hold your Farting with this condition? 

Автор Tim Wright (12 дней)
Did you find that you would get eggy horrible burps then vomiting or
diarrhoea on a regular basis ?

Автор NUNYA BIZZNISS (1 месяц)
I wish I could get Crohns......you people don't know what you have! You
are BLESSED!! I have to eat HUGE amounts of fiber to get massive farts
that you get naturally......J~E~A~L~O~U~S!!!!!!!!!!!
DON'T HIDE!!!!......JUST LET THEM FLY!!!!!

Автор Sean Roderick"s Music Channel (2 месяца)
Your a star, I'm in hospital with the disease now, waiting for my
operation, all the best keep posting ...

Автор Jesse Balkcom (6 месяцев)
Hey what's going on bro? I really respect you for making this video. I was
diagnosed with Crohn's along with a chronic liver disease and a blood
disorder when I was 19. My life changed drastically. I was an athlete in
high school and was always in great shape and then that day came. I ended
up going from being a 215lbs to 135lbs in the period of a month from going
to the bathroom so much. I'm 26 now and still suffering. I have my good
days, but when I have those down days, they are really down. I feel alone.
I usually stay away from the world. I outcast myself. I often wonder about
finding a woman and having my own family someday. I can barely work since
my down's outweigh the up's. I try to stay positive, but that fades. So
once again, you got heart, you're brave and I wish you the best bro.

Автор Amanda Jones (6 месяцев)
Jonny,

With respect to relationships let me give you some words of wisdom. There
are plenty of people who will like/love you regardless of whether or not
you have Crohn's. Yes, there are plenty of people as well who will not take
the time to understand what you're dealing with and they're just not the
right people for you. Can't tell if you're in a relationship now (based on
video) but here's a little bit of advice. If you are, the sooner you
discuss it with that person the better. If that person is potentially the
right person for you it will only increase your bond. It will also relieve
a lot of stress - especially on dates. If the person is unwilling to be
with you or even take the time to learn what you're dealing with then
you've saved yourself a lot of wasted time.

Now, knowing when to discuss your condition when entering a new
relationship can be trickier. In the end it really comes down to two
things. 1. When you're comfortable and 2. Whether or not the person you're
with is the right one for you. They're either going to like/love and accept
you regardless of whether you tell them on the first date or later on.

I'm sure many will argue that bringing it up on a first date or second
might be too soon and there are some valid points to that. Some perceive
that as opening up too quickly and potentially scaring people off not
necessarily because they're grossed out or don't want to be with you but
because they might perceive that as opening up too quickly and trying to
rush into a serious relationship too soon.

In the end, there's no right answer, only what you feel is right.
Regardless of when you tell them or how you tell them if that person you're
with is the right person for you (either at that stage in your life as or
as a spouse) they will see past it.

Best of luck

Автор Thaila Skye (6 месяцев)
I originally found your channel via this video. And then I watched your
other videos. And then I saw the FindMike campaign film and just sat
sobbing for about ten minutes. (In a good way... if that makes sense?)
I have Crohn's disease, and my bowel perforated, so I had to have ostomy
surgery (and make videos about it). So many conditions (whether it's a
physical illness or mental illness) are hardly ever talked about openly
because people are embarrassed or scared, or just don't understand.
I'm so glad you are doing what you're doing, and I'm proud to be doing what
I'm doing too. Because if it helps someone recognise symptoms, whether it's
in themselves or in others, it can save a life.
Keep fighting, you're doing great. <3 xTxx 

Автор kwixotic (6 месяцев)
You might know of a thing called flat d deodorizer which doesn't work as
well as the maker makes it out to be. However, it does prevent a residual
smell in one's underpants. Apparently, Crohn's is more common in the UK
than I thought and of course common in the North American continent.

Автор une rebelle (22 дня)
i'm from algeria and me and my sister we have chron disease and we soufre

Автор Doo Lally (4 месяца)
Hi everyone with Crohn's - me too!
I had symptoms even after a major bowel resection and finally was told I
had IBS as well.
Please research a FODMAPS diet. It has helped me a lot!

Автор SUPERBADJEFFREY (4 месяца)
People with Crohn's disease fart out their dick.

Автор Gillian Dilkes (6 месяцев)
you seem to be taking the piss. Is that you on the right column oh yes it
is. with all those other conditions. surely not. shame on you and shame on
me if i am wrong

Автор Patti Jo Neronha (5 месяцев)
What courage... I am also a Crohnie... Thank you for sharing

Автор patricia terrell (7 месяцев)
Everything that you said hits home. I feel exactly the same way and mask it
with humor. 

Автор sage willow (8 месяцев)
you are beautiful ...farts and all!

Автор Lucy Jordan (9 месяцев)
I know how you feel - especially getting intimate it scared me so much - I
wasn't until about one and a half years after diagnosis. You just have to
tell them if it's going to be an issue, which means making sure you're not
TMIing (too much information) and get to know them first. Absolutely feel
your pain though, every time I leave the house it really panics me, and
going anywhere further than my town absolutely terrifies me. Even if
something doesn't go wrong you're always scared that it might. I remember
breaking down once in a pharmacy because they hadn't got the antibiotics I
needed and I was so exhausted from trying about 7 others, the overwhelming
feeling is the worst. Though it makes it easier knowing other people go
through similar things. 

Автор Alyssa Callaghan (6 месяцев)
you're very attractive

Автор xValetinax (10 месяцев)
2 questions: How would you recommend supporting someone with Crohns? Do you
think someone's mental health can affect the control they have over
Chrones?

Автор valeriodujmovic (11 месяцев)
GINGER ROOT can cure all of the digestive problems ! Start the morning
with some warm water, half lemon squeezed in it, teaspoon of real honey,
cinnamon and some GINGER ROOT ! GINGER ROOT RULES !!! It will take a few
weeks for the symptoms to go away. Plus everything that ''torteinlunde'' is
saying down there. 

Автор luke tomlin (1 год)
watched your video about your crohn's and your worries about finding a
partner! My ex, and an ex who remains a great friend still, had crohn's!
All the same problems as you described! I just wanted to say please don't
worry, my ex and I just laughed about it and we worked fine together ;) you
are good looking and have great personality and presence - that is what
matters above anything else! Just be honest from the start, there are
plenty of people out there for you who understand and can except other
peoples issues. Keep up the great work you do :) 

Автор Brandon Gamer (1 год)
I went to docs today because of symptoms and they said. I've got 2 go to
hospital 2morrow but if I got it I could be like my footballing hero darren
fletcher

Автор jessica feldman (1 год)
I have post infecious IBS since 2012 its ruined and taken over my life and
I can 100% relate to this though its so different I am constantly running
to the loo and your so brave Jonny I am so proud to even know you take care
hun xxxxxxxx always here if you wanna talk if you remember me I was 2 years
below you xxxx

Автор livin abox (9 месяцев)
2 years ago i was throwing up poo, id had guts ache for 2 weeks and it was
horrible. I googled it and then realized some thing was badly wrong. I went
to the hospital and told them the story and within 24 hours i had an
operation that saved my life. Yep running in the loo 6 times a day aint fun
so i know where you are coming from. 

Автор joseph mengele (1 год)
thank you for sharing your story. hang in there, mate.

Автор Tess M (2 года)
Thank you for putting this video up...its nice to hear someone actually
talk about crohns in a honest way - and about how it effects your life, not
just about the condition. I'm 22 and was diagnosed with crohns earlier this
year, and currently struggling to find a suitable treatment for me. I've
failed on one already. I hope you are dealing with it ok currently, and
continue to :)

Автор RLCDesigns (2 года)
wow... you have Crohn's as well... Its HELL love your channel friend

Автор Michael Munger (1 год)
Hey buddy.. Seeing this video you posted really meant a lot because I am
going through basically the same and it's hard not feeling completely
alone. Always worrying about what you're putting into your body and never
knowing if it will get any better can be very discouraging but I think the
first and most important step is being honest and open about what's going
on and that's what you did. You seem like an amazing guy and I hope it all
works out and I think you'll come out of this.

Автор Jonny Benjamin 1 (2 года)
I am sorry to read your message. Try and keep positive and definitely keep
fighting, i know it's really difficult. I hope the people around you are
understanding and supportive. At my worst times, i wanted to give up and
hide from the world so it's inspiring to hear that you keep going and try
to keep your head up. Hope things improve for you soon. Be well my friend.

Автор VideoZion (2 года)
Very sincere and honest, tell yourself you are blessed, and I see, because
of your positive and hopeful attitude that you can overcome the sadness
that this condition has caused you, me and everyone else. I was diagnosed
last fall, and this fall I am doing better, after doing lots of testing
with naturopathic doctors. I've been changing my diet and supplementing,
and I hope you can find some good resources out there to point you in a
good direction. Healingwell (dot) com forums are amazing!

Автор Jeff Wood (2 года)
I can tell by your voice that you are still trying to wrap your arms around
the concept of having Crohn's and all that comes with it. Talking about
it...even just via video will help you tremendously. Hopefully you are
better now talking about the disease and dealing with it. Last November, my
15 year old daughter was diagnosed with Crohn's. Her case ended up being
one of the worst that the Doctors at Children's Hospital of Pittsburgh had
ever seen.

Автор hoppin henry (1 год)
I have crohns to found out I had it a 3 months ago and was in hospital for
2 months and had 3 kidney stones and a stint at the same time on pantasa
and remicade every 8 weeks next time is march 14

Автор Jonny Benjamin 1 (1 год)
Thanks...wish all the best to your Mum...tell her to keep strong! It is
tough! She's lucky to have you!

Автор Gracie Wright (2 года)
you are very inspirational, and humble. i was diagnosed three years ago and
i still struggle sometimes balancing social life, relationships and also
work. This is very helpful!

Автор Tohellwithgoogleplus (1 год)
Aww sugar): I just wanna give you a hug!

Автор AngloAm (1 год)
If somebody loves you, they won't mind you burping and parping through the
day. You can shove a rose up there, or get bismuth or activated charcoal
things to help keep fresh. And they certainly won't mind you having to use
the toilet seven or eight times. In fact, if they really care about you,
they'll get some comfort from your wind and your tummy turmoil, because if
it stops then they will worry about what's changed. Would you refuse to
love somebody because they had Crohn's?

Автор Jonny Benjamin 1 (1 год)
You're not alone...and hopefully you will meet someone that understands and
loves you for who you are. I'm sure that person is out there. The
embarassment is harder for girls though like you say. But remember you
can't help it..don't feel angry at yourself, try and be kind to yourself. I
know its hard and i really feel your pain. Keep strong and keep fighting :)

Автор andaymartyn (1 год)
please see a naturopath for your stomach problems

Автор Jonny Benjamin 1 (1 год)
it is nacc..look them up on google

Автор torteinlunde (1 год)
You should be able to control most of these symptoms by changing the food
you are eating. This can be different from person to person, but my advice
is; do not eat cheese, mils or any diary products, eat more vegetables and
fruits (fruits best blended as in a smoothie), eat less red meat, more fish
(except for salmon which have tor be of the best quality to work), do not
eat sugar (especially refined), keep off animal fat. All these advices are
about eating healthy (except the diary products?).

Автор Katie JoanneH (1 год)
you're cute, hope things get better!

Автор Soph S (2 года)
I'm 19 I have just recently been diagnosed with crohns disease (about 7
months) so still learning to deal with it, but honestly when ya gotta go
you gotta go! It is a bit shameful but honestly who gives a shit man! i've
just learnt to deal with nature ;) and I know what ya mean about tired! I
have just recently had achey joints/bones so getting tested for arthritis
:( do you have the same prob with that? any who cares bro, if ya got gas ya
got gas nothing you can do about it :)

Автор Jonny Benjamin 1 (2 года)
Sent you a message.

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